{"id":274,"date":"2024-07-01T18:24:57","date_gmt":"2024-07-01T16:24:57","guid":{"rendered":"https:\/\/www.srdickovedny.cz\/aktualne\/?page_id=274"},"modified":"2026-10-11T17:49:41","modified_gmt":"2026-10-11T15:49:41","slug":"tradicni-srdickove-dny","status":"publish","type":"page","link":"https:\/\/www.srdickovedny.cz\/aktualne\/tradicni-srdickove-dny\/","title":{"rendered":"Tradi\u010dn\u00ed Srd\u00ed\u010dkov\u00e9 dny"},"content":{"rendered":"

Tradi\u010dn\u00ed Srd\u00ed\u010dkov\u00e9 dny<\/h1><\/div>

Zveme v\u00e1s na zimn\u00ed Srd\u00ed\u010dkov\u00e9 dny, kter\u00e9 se uskute\u010dn\u00ed od 30. listopadu do 4. prosince 2026 ve vybran\u00fdch m\u011bstech a \u0161kol\u00e1ch po cel\u00e9 \u010cesk\u00e9 republice.<\/p>\n

Na\u0161e tradi\u010dn\u00ed ve\u0159ejn\u00e1 sb\u00edrka pom\u00e1h\u00e1 v\u00e1\u017en\u011b nemocn\u00fdm d\u011btem prost\u0159ednictv\u00edm v\u00fdt\u011b\u017eku z prodeje p\u0159edm\u011bt\u016f pomoci. Letos si m\u016f\u017eete od na\u0161ich dobrovoln\u00edk\u016f zakoupit propisovac\u00ed tu\u017eky v r\u016fzn\u00fdch barv\u00e1ch za 30 K\u010d, barevn\u00e9 reflexn\u00ed p\u0159\u00edv\u011bsky ve tvaru srd\u00ed\u010dka za 35 K\u010d a 3D z\u00e1lo\u017eky s r\u016fzn\u00fdmi motivy za 40 K\u010d. Dal\u0161\u00ed p\u0159edm\u011bty pomoci najdete tak\u00e9 na shop.zivotdetem.cz.<\/p>\n

Jednotliv\u00e9 p\u0159edm\u011bty mohou ud\u011blat radost v\u00e1m, va\u0161im bl\u00edzk\u00fdm i koleg\u016fm v pr\u00e1ci. Jejich zakoupen\u00edm z\u00e1rove\u0148 uk\u00e1\u017eete, \u017ee m\u00e1te srdce na spr\u00e1vn\u00e9m m\u00edst\u011b, a pom\u016f\u017eete d\u011btem a rodin\u00e1m, kter\u00e9 se bez pomoci druh\u00fdch neobejdou.<\/p>\n

Ka\u017ed\u00fd zakoupen\u00fd p\u0159edm\u011bt tak prom\u011bn\u00ed malou radost v konkr\u00e9tn\u00ed pomoc tam, kde je skute\u010dn\u011b pot\u0159eba.<\/p>\n

V\u00fdt\u011b\u017eek ze sb\u00edrky vyu\u017e\u00edv\u00e1me po cel\u00fd rok na \u00fahradu pot\u0159ebn\u00fdch rehabilitac\u00ed, invalidn\u00edch voz\u00edk\u016f, zdravotn\u00edch ko\u010d\u00e1rk\u016f, zdravotnick\u00e9ho materi\u00e1lu, speci\u00e1ln\u00ed v\u00fd\u017eivy a dal\u0161\u00edch pot\u0159eb usnad\u0148uj\u00edc\u00edch rodin\u00e1m n\u00e1ro\u010dnou ka\u017edodenn\u00ed p\u00e9\u010di. Na str\u00e1nce #ZivotDetem<\/a><\/span> se m\u016f\u017eete pod\u00edvat, kam p\u0159esn\u011b va\u0161e podpora putuje.<\/p>\n<\/div><\/div><\/div>

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D\u00edky v\u00e1m pom\u016f\u017eeme Fil\u00edpkovi
\na dal\u0161\u00edm nemocn\u00fdm d\u011btem.<\/p><\/h2><\/div><\/div><\/div><\/div><\/div>

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Fil\u00edpek se narodil jako zdrav\u00e9 miminko po naprosto bezprobl\u00e9mov\u00e9m t\u011bhotenstv\u00ed. Nic nenasv\u011bd\u010dovalo tomu, \u017ee by se jeho \u017eivot m\u011bl brzy z\u00e1sadn\u011b zm\u011bnit. Kdy\u017e mu v\u0161ak byly pouh\u00e9 dva m\u011bs\u00edce, dostal velmi urputnou r\u00fdmu. Jeho stav se rychle zhor\u0161oval, za\u010dal se dusit, modral a chv\u00edlemi p\u0159est\u00e1val d\u00fdchat. Rodi\u010de s n\u00edm proto okam\u017eit\u011b zam\u00ed\u0159ili do nemocnice, kde musel b\u00fdt napojen na p\u0159\u00edstroje.<\/p>\n

L\u00e9ka\u0159i Fil\u00edpkovi provedli \u0159adu vy\u0161et\u0159en\u00ed. Zjistili, \u017ee jeho pot\u00ed\u017ee zp\u016fsobily RS viry a \u017ee prod\u011blal akutn\u00ed bronchitidu. Vy\u0161et\u0159en\u00ed sou\u010dasn\u011b odhalila p\u0159\u00edtomnost velmi vz\u00e1cn\u00e9 houby, nikdo v\u0161ak rodi\u010d\u016fm nedok\u00e1zal vysv\u011btlit, kde k n\u00ed mohl jejich mal\u00fd chlape\u010dek p\u0159ij\u00edt. V\u0161e se nav\u00edc odehr\u00e1valo v dob\u011b pandemie covidu-19, a proto Fil\u00edpek opakovan\u011b podstupoval tak\u00e9 testy na toto onemocn\u011bn\u00ed. Jejich v\u00fdsledky v\u0161ak byly poka\u017ed\u00e9 negativn\u00ed.<\/p>\n

Chlape\u010dek dostal antibiotika a kortikoidy a v\u0161ichni \u010dekali, jak na l\u00e9\u010dbu zareaguje. Jeho stav byl natolik v\u00e1\u017en\u00fd, \u017ee l\u00e9ka\u0159i rodi\u010de p\u0159ipravovali i na nejhor\u0161\u00ed. Upozornili je, \u017ee jejich syn m\u016f\u017ee zem\u0159\u00edt nebo m\u016f\u017ee z\u016fstat bez nad\u011bje na dal\u0161\u00ed v\u00fdvoj pouze le\u017eet na l\u016f\u017eku. Pro rodi\u010de to byly chv\u00edle pln\u00e9 strachu a bezmoci, b\u011bhem kter\u00fdch v\u016fbec netu\u0161ili, co bude n\u00e1sledovat.<\/p>\n<\/div><\/div><\/div><\/div><\/div>

Fil\u00edpek sv\u016fj prvn\u00ed velk\u00fd boj o \u017eivot nakonec vyhr\u00e1l a mohl se vr\u00e1tit dom\u016f. Jeho zdravotn\u00ed obt\u00ed\u017ee t\u00edm ale zdaleka neskon\u010dily. I dnes pro n\u011bj m\u016f\u017ee oby\u010dejn\u00e1 r\u00fdma znamenat v\u00e1\u017en\u00e9 nebezpe\u010d\u00ed. Za\u010dne se dusit a \u010dasto mus\u00ed znovu do nemocnice, kde mu pom\u00e1haj\u00ed p\u0159\u00edstroje. Rodi\u010de proto musej\u00ed neust\u00e1le sledovat jeho zdravotn\u00ed stav a b\u00fdt p\u0159ipraveni okam\u017eit\u011b zas\u00e1hnout.<\/p>\n

Nikdo z l\u00e9ka\u0159\u016f dlouho nedok\u00e1zal rodin\u011b \u0159\u00edct, pro\u010d je jejich syn od narozen\u00ed tak \u010dasto a v\u00e1\u017en\u011b nemocn\u00fd. Fil\u00edpkova maminka se v\u0161ak necht\u011bla sm\u00ed\u0159it s t\u00edm, \u017ee p\u0159\u00ed\u010dina jeho obt\u00ed\u017e\u00ed z\u016fstane nezn\u00e1m\u00e1. Neust\u00e1le hledala nov\u00e9 informace a mo\u017en\u00e9 odpov\u011bdi. P\u0159i sv\u00e9m p\u00e1tr\u00e1n\u00ed za\u010dala m\u00edt podez\u0159en\u00ed, \u017ee by \u010d\u00e1st probl\u00e9m\u016f mohla souviset s nosn\u00ed mandl\u00ed, a po\u017e\u00e1dala proto l\u00e9ka\u0159e o jej\u00ed kontrolu.<\/p>\n

Zpo\u010d\u00e1tku se na jej\u00ed domn\u011bnku d\u00edvali rozpa\u010dit\u011b, maminka v\u0161ak nakonec \u017e\u00e1danku na vy\u0161et\u0159en\u00ed na ORL z\u00edskala. Odborn\u00edci n\u00e1sledn\u011b zjistili, \u017ee Fil\u00edpkova nosn\u00ed mandle je mimo\u0159\u00e1dn\u011b zv\u011bt\u0161en\u00e1. Kdy\u017e mu ji ve \u010dtrn\u00e1cti m\u011bs\u00edc\u00edch operovali, l\u00e9ka\u0159i rodi\u010d\u016fm \u0159ekli, \u017ee takto velkou nosn\u00ed mandli je\u0161t\u011b nikdy nevid\u011bli.<\/p>\n

Po operaci se stalo n\u011bco, v co u\u017e t\u00e9m\u011b\u0159 nikdo nedoufal. Chlape\u010dek, kter\u00fd m\u011bl podle p\u016fvodn\u00edch progn\u00f3z pouze nehybn\u011b le\u017eet, se za\u010dal pohybovat a l\u00e9zt po \u010dty\u0159ech. Pro jeho rodi\u010de to byl mal\u00fd z\u00e1zrak a sou\u010dasn\u011b d\u016fkaz, \u017ee m\u00e1 smysl nep\u0159est\u00e1vat hledat dal\u0161\u00ed mo\u017enosti, jak jejich synovi pomoci.<\/p>\n<\/div><\/div><\/div>

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\u201e\u0158\u00edkali n\u00e1m, \u017ee n\u00e1\u0161 syn z\u016fstane jen nehybn\u011b le\u017eet.
\nDnes Fil\u00edpek chod\u00ed,\u201c \u0159\u00edk\u00e1 jeho maminka se slzami v o\u010d\u00edch.<\/p><\/h2><\/div><\/div><\/div><\/div><\/div>

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Po t\u00e9to zku\u0161enosti se rozhodli vz\u00edt Fil\u00edpk\u016fv osud do vlastn\u00edch rukou. Za\u0159\u00eddili mu v Praze speci\u00e1ln\u00ed genetick\u00e9 vy\u0161et\u0159en\u00ed, kter\u00e9 kone\u010dn\u011b p\u0159ineslo odpov\u011b\u010f na ot\u00e1zku, pro\u010d se jejich syn pot\u00fdk\u00e1 s tolika z\u00e1va\u017en\u00fdmi obt\u00ed\u017eemi. V\u00fdsledky potvrdily, \u017ee Fil\u00edpek trp\u00ed vz\u00e1cn\u00fdm a nevyl\u00e9\u010diteln\u00fdm genetick\u00fdm onemocn\u011bn\u00edm zvan\u00fdm Phelan\u016fv\u2013McDermid\u016fv syndrom, p\u0159i kter\u00e9m chyb\u00ed \u010d\u00e1st 22. chromozomu.<\/p>\n

Progn\u00f3za tohoto syndromu nen\u00ed p\u0159\u00edzniv\u00e1. Onemocn\u011bn\u00ed se m\u016f\u017ee projevovat z\u00e1va\u017en\u00fdm ment\u00e1ln\u00edm posti\u017een\u00edm, v\u00fdrazn\u011b opo\u017ed\u011bn\u00fdm v\u00fdvojem, neschopnost\u00ed mluvit \u010di samostatn\u011b chodit a pot\u0159ebou pou\u017e\u00edvat pleny. Prov\u00e1zet jej mohou tak\u00e9 v\u00e1\u017en\u00e9 zdravotn\u00ed komplikace, kter\u00e9 bezprost\u0159edn\u011b ohro\u017euj\u00ed \u017eivot nemocn\u00fdch d\u011bt\u00ed.<\/p>\n

Kdy\u017e se rodi\u010de dozv\u011bd\u011bli Fil\u00edpkovu diagn\u00f3zu, byli zdrceni. Jen t\u011b\u017eko se vyrovn\u00e1vali s p\u0159edstavou, \u017ee jejich chlape\u010dek mo\u017en\u00e1 nikdy nebude chodit ani mluvit a z\u016fstane po cel\u00fd \u017eivot zcela odk\u00e1z\u00e1n na pomoc druh\u00fdch. Po prvotn\u00edm \u0161oku se v\u0161ak rozhodli, \u017ee se nep\u0159estanou sna\u017eit a ud\u011blaj\u00ed v\u0161echno, co bude v jejich sil\u00e1ch.<\/p>\n

Fil\u00edpkova maminka s n\u00edm za\u010dala pravideln\u011b rehabilitovat a vyhled\u00e1vat dal\u0161\u00ed mo\u017enosti, kter\u00e9 by mohly podpo\u0159it jeho v\u00fdvoj. Pokroky p\u0159ich\u00e1zely velmi pomalu a byly vykoupen\u00e9 dlouh\u00fdmi roky intenzivn\u00edho cvi\u010den\u00ed, p\u00e9\u010de a velk\u00e9ho odhodl\u00e1n\u00ed. Rodina nav\u00edc mus\u00ed v\u0161echny terapie, na kter\u00e9 s Fil\u00edpkem doch\u00e1z\u00ed, hradit sama, proto\u017ee je zdravotn\u00ed poji\u0161\u0165ovny nepropl\u00e1cej\u00ed.<\/p>\n<\/div><\/div><\/div><\/div><\/div>

Po n\u011bkolika letech se ale dostavil v\u00fdsledek, kter\u00e9mu p\u016fvodn\u011b t\u00e9m\u011b\u0159 nikdo nev\u011b\u0159il. Fil\u00edpek za\u010dal chodit. Jeho ch\u016fze je sice st\u00e1le nejist\u00e1, p\u0159esto jde o obrovsk\u00fd \u00fasp\u011bch, za kter\u00fdm stoj\u00ed nekone\u010dn\u00e9 mno\u017estv\u00ed pr\u00e1ce, trp\u011blivosti a pravideln\u00fdch rehabilitac\u00ed. Ka\u017ed\u00fd jeho krok je pro rodi\u010de potvrzen\u00edm, \u017ee jejich \u00fasil\u00ed m\u00e1 smysl.<\/p>\n

Ka\u017edodenn\u00ed p\u00e9\u010de o Fil\u00edpka p\u0159esto z\u016fst\u00e1v\u00e1 velmi n\u00e1ro\u010dn\u00e1. S\u00e1m si ne\u0159ekne o j\u00eddlo ani o pit\u00ed, a jeho rodi\u010de proto musej\u00ed neust\u00e1le hl\u00eddat v\u0161echny jeho pot\u0159eby. M\u00edv\u00e1 tak\u00e9 \u017eivot ohro\u017euj\u00edc\u00ed z\u00e1chvaty, p\u0159i kter\u00fdch mu prudce stoup\u00e1 t\u011blesn\u00e1 teplota a hroz\u00ed, \u017ee se za\u010dne dusit. Rodina se musela nau\u010dit tyto nebezpe\u010dn\u00e9 stavy rozpoznat a v\u011bd\u011bt, jak v takov\u00e9 chv\u00edli reagovat.<\/p>\n

Fil\u00edpek nav\u00edc velmi \u010dasto bez zjevn\u00e9 p\u0159\u00ed\u010diny k\u0159i\u010d\u00ed. Tyto dlouh\u00e9 a vy\u010derp\u00e1vaj\u00edc\u00ed chv\u00edle jsou n\u00e1ro\u010dn\u00e9 nejen pro rodi\u010de, ale tak\u00e9 pro jeho star\u0161\u00ed sest\u0159i\u010dku. Velk\u00e1 \u010d\u00e1st \u010dasu a pozornosti cel\u00e9 rodiny se pochopiteln\u011b soust\u0159ed\u00ed na Fil\u00edpka a jeho zdravotn\u00ed stav. Jeho sestra se proto musela nau\u010dit b\u00fdt velmi samostatn\u00e1, hr\u00e1t si sama a zvl\u00e1dat situace, kter\u00e9 ostatn\u00ed d\u011bti v jej\u00edm v\u011bku v\u016fbec \u0159e\u0161it nemus\u00ed. Tak\u00e9 jej\u00ed \u017eivot nemoc mlad\u0161\u00edho bratra v\u00fdrazn\u011b ovlivnila.<\/p>\n

Fil\u00edpkovi rodi\u010de by si stejn\u011b jako v\u0161ichni ostatn\u00ed p\u0159\u00e1li p\u0159edev\u0161\u00edm to, aby byl jejich syn zdrav\u00fd. V\u016fbec by jim nevadilo, kdyby n\u011bkdy zlobil, neposlouchal nebo se \u0161patn\u011b u\u010dil. P\u0159\u00e1li by si, aby mohl pro\u017e\u00edvat oby\u010dejn\u00e9 d\u011btstv\u00ed a d\u011blat stejn\u00e9 v\u011bci jako ostatn\u00ed d\u011bti. V\u011bd\u00ed v\u0161ak, \u017ee toto p\u0159\u00e1n\u00ed se jim nejsp\u00ed\u0161 nikdy nespln\u00ed.<\/p>\n<\/div><\/div><\/div>

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P\u0159esto neztr\u00e1cej\u00ed nad\u011bji. V\u011b\u0159\u00ed, \u017ee d\u00edky pravideln\u00e9mu cvi\u010den\u00ed, terapi\u00edm a ka\u017edodenn\u00ed p\u00e9\u010di bude Fil\u00edpek d\u011blat dal\u0161\u00ed pokroky. Dok\u00e1zal u\u017e n\u011bco, co podle p\u016fvodn\u00edch progn\u00f3z dok\u00e1zat nem\u011bl \u2013 postavil se na vlastn\u00ed nohy a za\u010dal chodit. Jeho nejbli\u017e\u0161\u00ed proto doufaj\u00ed, \u017ee je jednou p\u0159ekvap\u00ed znovu a t\u0159eba vyslov\u00ed i sv\u00e9 prvn\u00ed slov\u00ed\u010dko.<\/p>\n

Pomoci m\u016f\u017eete tak\u00e9 zasl\u00e1n\u00edm jak\u00e9koliv \u010d\u00e1stky na n\u00e1\u0161 transparentn\u00ed \u00fa\u010det 1117771700\/5500 s variabiln\u00edm symbolem 2626. Vyu\u017e\u00edt m\u016f\u017eete rovn\u011b\u017e QR platbu uvedenou v let\u00e1\u010dku.<\/p>\n

Pro platbu ze zahrani\u010d\u00ed:
\nIBAN CZ4155000000001117771700, BIC\/SWIFT RZBCCZPP, N\u00e1zev p\u0159\u00edjemce \u201eo.p.s. \u017divot d\u011btem\u201c, adresa, Kocl\u00ed\u0159ova 771, 198 00 Praha 9-Kyje, do pozn\u00e1mky \u201eVS 2626\u201c, banka Raiffeisenbank. D\u011bkujeme za pomoc! \u2764\ufe0f<\/p>\n<\/div><\/div><\/div><\/div><\/div><\/p>\n","protected":false},"excerpt":{"rendered":"","protected":false},"author":2,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"100-width.php","meta":{"footnotes":""},"categories":[],"tags":[],"class_list":["post-274","page","type-page","status-publish","hentry"],"acf":[],"yoast_head":"\nTradi\u010dn\u00ed Srd\u00ed\u010dkov\u00e9 dny - Srd\u00ed\u010dkov\u00e9 dny<\/title>\n<meta name=\"description\" content=\"Zveme v\u00e1s na na\u0161e jarn\u00ed Srd\u00ed\u010dkov\u00e9 dny, kter\u00e9 prob\u00edhaj\u00ed v t\u00fddnu 30. 11. \u2013 4. 12. 2026 ve vybran\u00fdch m\u011bstech po cel\u00e9 \u010cR. 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