{"id":569,"date":"2024-11-28T17:40:44","date_gmt":"2024-11-28T16:40:44","guid":{"rendered":"https:\/\/www.srdickovedny.cz\/aktualne\/?page_id=569"},"modified":"2026-01-08T23:13:36","modified_gmt":"2026-01-08T22:13:36","slug":"zuzanka2024","status":"publish","type":"page","link":"https:\/\/www.srdickovedny.cz\/aktualne\/zuzanka2024\/","title":{"rendered":"Zuzanka, 3 roky, SMA II. typu"},"content":{"rendered":"

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Zuzanka, 3 roky, SMA II. typu<\/h1><\/div>

Pros\u00edme pomozte j\u00ed nap\u0159\u00edmo, d\u011bkujeme!<\/p><\/div>\t<\/div>\n\t

<\/i>Pomoci hned<\/span><\/a><\/div>
<\/i>P\u0159ehr\u00e1t video<\/span><\/a><\/div>\t<\/div>\n<\/div><\/div><\/div><\/div><\/section>

Zuzanka, 3 roky, SMA II. typu<\/h2><\/div>

TAK\u00c9 SI CHCE HR\u00c1T S OSTATN\u00cdMI D\u011aTMI<\/p><\/h3><\/div>

Spin\u00e1ln\u00ed svalov\u00e1 atrofie II. typu je nemoc ochabuj\u00edc\u00ed svaly v t\u011ble. Za\u010d\u00edn\u00e1 se projevovat od p\u016fl roku \u017eivota a plat\u00ed, \u017ee \u010d\u00edm d\u0159\u00edve se na nemoc p\u0159ijde, t\u00edm je v\u011bt\u0161\u00ed \u0161ance na zlep\u0161en\u00ed. Rodin\u011b, ani pan\u00ed pediatri\u010dce nep\u0159idal v\u00fdvoji Zuzanky nijak zvl\u00e1\u0161tn\u00ed, proto se pot\u0159ebn\u00e9 testy d\u011blaly a\u017e v p\u016fldruh\u00e9m roce. A bylo to nav\u00edc n\u00e1hodou, maminka dostala doporu\u010den\u00ed j\u00edt na b\u011b\u017en\u00e9 testy. V\u00fdsledky v\u0161ak byly pro celou rodinu \u0161okuj\u00edc\u00ed.<\/p>\n

Zuzanka pot\u00e9 dost\u00e1vala kortikoidy, d\u011blala se \u0159ada test\u016f a za\u010dalo se s protahov\u00e1n\u00edm a rehabilitacemi. D\u00edky tomu v\u0161emu ud\u011blala hol\u010di\u010dka obrovsk\u00fd posun, m\u016f\u017ee se posadit, zkou\u0161\u00ed j\u00edst a chodit s berli\u010dkami. Nen\u00ed to ale jednoduch\u00e9 pro nikoho. Rodi\u010de mus\u00ed ka\u017ed\u00fd den hol\u010di\u010dku protahovat, jezd\u00ed s n\u00ed na fyzioterapie, ergoterapie, hipoterapie a na ambulantn\u00ed neurorehabilitace.\u00a0<\/span><\/p>\n

Proto by j\u00ed rodi\u010de r\u00e1di po\u0159\u00eddili elektrick\u00fd voz\u00ed\u010dek. Ten by j\u00ed nav\u00edc vydr\u017eel a\u017e do dosp\u011blosti a umo\u017enil j\u00ed voln\u011b se pohybovat. Poji\u0161\u0165ovny jim ale odm\u00edtaj\u00ed cokoliv uhradit a rodi\u010de bohu\u017eel nemaj\u00ed dostatek financ\u00ed na cokoliv dal\u0161\u00edho.<\/p>\n<\/div>

<\/i>Cel\u00fd p\u0159\u00edb\u011bh<\/span><\/a><\/div>
<\/i>Pomoci hned<\/span><\/a><\/div>
<\/i>Sd\u00edlet<\/span><\/a><\/div><\/div><\/div><\/div>
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