{"id":692,"date":"2025-02-09T19:04:51","date_gmt":"2025-02-09T18:04:51","guid":{"rendered":"https:\/\/www.srdickovedny.cz\/aktualne\/?page_id=692"},"modified":"2026-01-08T23:14:49","modified_gmt":"2026-01-08T22:14:49","slug":"elinkamatej2025","status":"publish","type":"page","link":"https:\/\/www.srdickovedny.cz\/aktualne\/elinkamatej2025\/","title":{"rendered":"Elinka, Mat\u011bj i jejich maminka trp\u00ed nemoc\u00ed mot\u00fdl\u00edch k\u0159\u00eddel"},"content":{"rendered":"

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Elinka, Mat\u011bj i jejich maminka trp\u00ed nemoc\u00ed mot\u00fdl\u00edch k\u0159\u00eddel<\/p><\/h1><\/div>

Pros\u00edme, pomozte jim nap\u0159\u00edmo.<\/p><\/div>\t<\/div>\n\t

<\/i>Pomoci hned<\/span><\/a><\/div>
<\/i>P\u0159ehr\u00e1t video<\/span><\/a><\/div>\t<\/div>\n<\/div><\/div><\/div><\/div><\/section>

Elinka, Mat\u011bj i jejich maminka trp\u00ed nemoc\u00ed mot\u00fdl\u00edch k\u0159\u00eddel<\/p><\/h2><\/div>

Elinka i maminka maj\u00ed Marfan\u016fv syndrom.<\/p><\/h3><\/div>

Nemoc mot\u00fdl\u00edch k\u0159\u00eddel je d\u011bdi\u010dn\u00e9 onemocn\u011bn\u00ed, projevuj\u00edc\u00ed se tvorbou puch\u00fd\u0159\u016f na k\u016f\u017ei i sliznici. I m\u00edrn\u00fd tlak m\u016f\u017ee zp\u016fsobit bolestiv\u00e9 r\u00e1ny, kter\u00e9 se dlouhou dobu hoj\u00ed.<\/p>\n

Maminka a jej\u00ed Elinka maj\u00ed je\u0161t\u011b Marfan\u016fv syndrom. Jde o genetickou poruchu pojivov\u00e9 tk\u00e1n\u011b. Takhle nemocn\u00e9 t\u011blo se jednodu\u0161e vyv\u00edj\u00ed jin\u00fdm zp\u016fsobem, ne\u017e to obvykle b\u00fdv\u00e1. Pravd\u011bpodobnost je jednu ku deseti tis\u00edc\u016fm. Ob\u011b maj\u00ed probl\u00e9my s klouby, vazy, \u0161lachami, se zrakem a p\u0159edev\u0161\u00edm se srdcem.\u00a0Elince se vrac\u00ed krev do srd\u00ed\u010dka a jej\u00ed maminku ji\u017e operovali srde\u010dn\u00ed chlope\u0148. Tehdy si p\u0159i praskl\u00e9 b\u0159i\u0161n\u00ed aort\u011b s\u00e1hla na samotn\u00e9 dno.<\/p>\n

Celou rodinu to ale je\u0161t\u011b v\u00edc stmelilo. Te\u010f spole\u010dn\u011b tr\u00e1v\u00ed v\u00edce \u010dasu, o\u0161et\u0159uj\u00ed se, chod\u00ed na proch\u00e1zky a hlavn\u011b si pom\u00e1haj\u00ed. Nikdo ale nev\u00ed, co bude d\u00e1l. Mat\u011bj je podle tabulek \u00fa\u0159ad\u016f ji\u017e zdrav\u00fd, proto mamince vzali p\u0159\u00edsp\u011bvek na p\u00e9\u010di. Ta je proto ve velmi slo\u017eit\u00e9 situaci, proto\u017ee i tak mus\u00ed koupit d\u011btem j\u00eddlo, oble\u010den\u00ed, pom\u016fcky do \u0161koly, j\u00edzdenky na autobus, k l\u00e9ka\u0159\u016fm a v\u0161ichni t\u0159i nutn\u011b pot\u0159ebuj\u00ed zdravotn\u00ed materi\u00e1l pro o\u0161et\u0159ov\u00e1n\u00ed puch\u00fd\u0159\u016f. A na to v\u0161e nem\u00e1 finance.<\/p>\n<\/div>

<\/i>Cel\u00fd p\u0159\u00edb\u011bh<\/span><\/a><\/div>
<\/i>Pomoci hned<\/span><\/a><\/div>
<\/i>Sd\u00edlet<\/span><\/a><\/div><\/div><\/div><\/div>
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